We invite you to attend our next IFNA – UK and Ireland Chapter webinar, titled “Mental Health Care for the Rare Disease Community.” The free webinar will take place on Monday 27 February 2023, from 12.30pm until 2pm GMT, on Zoom. Click here to register! Coinciding with Rare Disease Day, the webinar will focus on … Read more Webinar – Mental Health Care for the Rare Disease Community
Given that one in every ten of the world’s children has a disability (1) the International Disability Day offers the opportunity to reflect on how nursing has been transformed from caring for disabled children within institutional settings to its current aim for family nursing. This includes caring for children within their own homes whenever possible. … Read more Dr Jenny Waite-Jones discusses International Disability Day
We invite you to attend our fifth IFNA – UK and Ireland Chapter webinar, titled “Re-shape, Re-form, Re-imagine a True Partnership With Families Living With Rare Diseases.” The free webinar will take place on Monday 28 February 2022, from 12.30pm until 2pm GMT, on Zoom. Click here to register! Coinciding with Rare Disease Day, the … Read more Webinar – Partnerships with Families Living with Rare Diseases
May is Huntington’s Disease Awareness Month. This year the national organisations that support people impacted by Huntington’s disease across Ireland, England and Wales, Northern Ireland and Scotland, have joined together as the Huntington’s Disease Alliance UK and Ireland. Family members from each region are sharing their stories and contributions in the collective ‘Family Matters’ … Read more Family Matters Campaign for Huntington’s Disease
WOrld young Rheumatic Diseases Day (WORD Day) is an annual international awareness day that takes place on March 18th each year. The aim of WORD Day is to first raise awareness of all the different kinds of rheumatic diseases in children and young people, while informing children and young people, parents, healthcare professionals, teachers, and … Read more Celebrate WORD Day 2021
