Below, you will find a selection of family nursing articles of relevance to our community of health visitors, midwives and nurses with an interest in family-focused care across the life course. If you have any additional suggestions for articles to include, please let us know.
Carr, S.M. (2004). A framework for understanding clinical reasoning in community nursing. Journal of Clinical Nursing 13: 850-857. Click here to access the article.
Rowland, E., Plumridge, G., Considine, A.- M., & Metcalfe, A. (2016). Preparing young people for future decision-making about cancer risk in families affected or at risk from hereditary breast cancer: A qualitative interview study. European Journal of Oncology Nursing 25: 9-15. Click here to access the article.
Parkinson, M., Carr, S., Rushmer, R. & Abley, C. (2016). Investigating what works to support family carers of people with dementia: A rapid realist review. Journal of Public Health 39(4):e290-e301. Click here to access the article.
Family-focused care interventions
Smith, J., Ali, P., Birks, Y., Curtis, P., Fairbrother, H., Kirk, S., Saltiel, D., Thompson, J. & Swallow, V. (2020). Umbrella review of family-focused care interventions supporting families where a family member has a long-term condition. Journal of Advanced Nursing 00:1– 13. Click here to access the article.
Nurses aiding condition identification and management
Metcalfe, A. (2018). Sharing Genetic Risk Information: Implications for family nurses across the life span. Journal of Family Nursing 24 (1): 86-105. Click here to access the article.
Mendes, Á., Metcalfe, A., Paneque, M., Sousa, L., Clarke, A.J., & Sequeiros, J. (2018). Communication of information about genetic risks: putting families at the center. Family Process 57 (3): 836-846. Click here to access the article.
Swallow, V., Clarke, C., Campbell, S. & Lambert, H. (2009). Nurses as family learning brokers: Shared management in childhood chronic kidney disease. Journal of Nursing and Healthcare of Chronic Illness 1(1): 49-59. Click here to access the article.
Scott, J. E. S., Swallow, V., Coulthard, M. G., Lambert, H. J., & Lee, R. E. J. (1997). Screening of newborn babies for familial ureteric reflux. Lancet 350(9075): 396-400. Click here to access the article.
Wolkowski, A. & Carr, S. (2017). Does respite care address the needs of palliative care service users and carers? Their perspectives and experiences. International Journal of Palliative Nursing 23(4):174-185.
Click here to access the article.
Clarke, C., Wolkowski, A. & Carr, S.M. (2010). What does respite care mean for palliative care service users and carers? Messages from a conceptual mapping. International Journal of Palliative Nursing 18(8):388-392. Click here to access the article.
Parents, carers, and families of children with acute conditions
Neill, S. J., & Coyne, I. (2018). The Role of Felt or Enacted Criticism in Parents’ Decision Making in Differing Contexts and Communities: Toward a Formal Grounded Theory. Journal of Family Nursing 24(3): 443–469. Click here to access the article.
Neill, S.J., Cowley, S. & Williams, C. (2013). The role of felt or enacted criticism in understanding parent’s help seeking in acute childhood illness at home: A grounded theory study. International Journal of Nursing Studies 50(6); 757-767. Click here to access the article.
Neill, S.J. (2010). Containing acute childhood illness within family life: A substantive grounded theory. Journal of Child Health Care 14(4): 327-344. Click here to access the article.
Neill, S.J. (2007). Grounded theory sampling: ‘Whole’ family research. Journal of Research in Nursing 12(5): 435-443. Click here to access the article.
Parents, carers, and families of children with long-term conditions
Waldboth, V., Patch, C., Mahrer-Imhof, R., & Metcalfe, A. (2016). Living a normal life in an extraordinary way: A systematic review investigating experiences of families of young people’s transition into adulthood when affected by a genetic and chronic childhood condition. International Journal of Nursing Studies 62: 44-59. Click here to access the article.
Smith, J., Swallow, V. & Coyne, I. (2015). Involving parents in managing their child’s long-term condition – a concept synthesis of family-centered care and partnership-in-care. Journal of Pediatric Nursing 30(1):143-159. Click here to access the article.
Swallow, V. M., Knafl, K., Santacroce, S., Campbell, M., Hall, A. G., Smith, T. & Carolan, I. (2014). An interactive health communication application for supporting parents managing childhood long-term conditions: outcomes of a randomized controlled feasibility trial. JMIR Research Protocols 3(4):e69. Click here to access the article.
Swallow, V., Lambert, H., Clarke, C., Campbell, S. & Jacoby, A. (2008). Childhood chronic-kidney-disease: A longitudinal-qualitative study of families learning to share management early in the trajectory. Patient Education and Counseling 73(2):354-362. Click here to access the article.
Participatory and co-production research approaches
Neill, S. J. (2005). Research with children: A critical review of the guidelines. Journal of Child Health Care 9(1): 46-58. Click here to access the article.