Shining the light on Sickle Cell on Rare Disease Day

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This is the first of  a series of Blogs written by Debbie Omodele, Children’s Haemoglobinopathy Nurse Specialist, Barking, Havering and Redbridge University Hospital NHS Trust. Keep an eye out for follow ups on topics such as preconceptual screening, managing conditions, psychological well-being, pain management and transition looking at the importnace of family wihtin this process. Enjoy. … Read more Shining the light on Sickle Cell on Rare Disease Day

Webinar – Mental Health Care for the Rare Disease Community

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We invite you to attend our next IFNA – UK and Ireland Chapter webinar, titled “Mental Health Care for the Rare Disease Community.” The free webinar will take place on Monday 27 February 2023, from 12.30pm until 2pm GMT, on Zoom. Click here to register! Coinciding with Rare Disease Day, the webinar will focus on … Read more Webinar – Mental Health Care for the Rare Disease Community

LGBTQIA+ History Month

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Barry Hill – Assistant Professor, Nursing Science and Critical Care, Northumbria University, Newcastle upon Tyne, UK. Barry.Hill@northumbria.ac.uk February marks celebration and also remembrance of LGBTQIA+ communities. What follows is a short piece of why this topic is important and can only serve to help us as family nurses to care for this community. Lesbian, Gay, … Read more LGBTQIA+ History Month

Learning Disabilities Nurses Supporting Families With an Autism Diagnosis

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The role of the Registered Nurse Learning Disabilities (RNLD) and the wider MDT in supporting families with an autism diagnosis Chloe Hawkins, Learning Disabilities Student Nurse Autism Spectrum Disorder (ASD) is a neurodevelopmental condition which is present from birth (National Institute for Health and Care Excellence, 2021). Autism presents differently in each individual, however there … Read more Learning Disabilities Nurses Supporting Families With an Autism Diagnosis

16th International Family Nursing Conference

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Photo of Ha'Penny Bridge over the River Liffey in Dublin, Ireland.

IFNC16 is coming to Dublin, Ireland The 16th International Family Nursing Conference (IFNC16) will be taking place in Dublin, Ireland from Tuesday 20th June until Friday 23rd June 2023. The theme of IFNC16 is ‘Global Innovations in Family Nursing: Advancing Family Health’. Pre-conference workshops will take place on Tuesday 20th June 2023 with the conference … Read more 16th International Family Nursing Conference

Impact on the family of managing cystic fibrosis and diabetes

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Born in 1971, Tim Wotton is 51 with D Delta cystic fibrosis (CF) and CF-related diabetes and still has his original lungs. Living in Wimbledon, UK, he works full-time as a communications specialist and is married to Katie (a senior nurse) with a 15 year old son, Felix. Here, he shares the impacts of his … Read more Impact on the family of managing cystic fibrosis and diabetes

Providing healthcare to trans people and communities

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Nursing the trans community As a nurse or health support worker, you will provide care for people from diverse backgrounds, and it is important that you help to create a safe and welcoming environment for all your patients and clients. As some trans patients have reported poor experiences of health care settings, your approach has … Read more Providing healthcare to trans people and communities

A mother’s lifelong support by Jill Edwards

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A mother’s lifelong support Cystic fibrosis (CF) is a serious, inherited, long term condition. CF primarily affects the lungs and digestive system but as it progresses other organs are affected. CF related diabetes (a different form of diabetes to type 1 & 2), liver disease, CF related arthritis and osteoporosis are complications of CF. People … Read more A mother’s lifelong support by Jill Edwards

Nephrotic mumma: chronic illness and motherhood by Sophie Clifford

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Living with an invisible chronic illness isn’t easy: you end up having rehearsed answers to lots of questions about your health, you know what it’s like to live with permanent fatigue, big worries about the future are just things you think about every day, you are incredibly good at collecting water samples in tiny bottles and you are probably on first name terms with a few of the nurses at your local hospital. Earlier this year I decided to add a baby into this craziness and the last 7 months have been the biggest learning curve of my life.

Read moreNephrotic mumma: chronic illness and motherhood by Sophie Clifford