Rare disease day 2022

Hello, my name is Jess and I am a Zebra!


Today is international rare disease day, a day which means so much to me as a person with multiple rare diseases! There are over 6000 rare diseases and so many people have to fight for care every single day meaning they have to teach and guide healthcare professionals rather than the other way round!

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The importance of pride for the LGBTQ+ community

In the UK we have just had pride month, which is a very important month in the LGBTQ+ calendar. Pride month is all about celebrating the achievements of those who fought for the LGBTQ+ movement back in 1969 and the progress that has happened within the community since, uniting and coming together over everything that … Read more The importance of pride for the LGBTQ+ community

Planetary Health Tweet Chat for Earth Day 2021

Join the IFNA – UK and Ireland Chapter for our next tweet chat, on the topic of planetary health on Thursday April 22nd, 2021, from 19:30 – 20:30 BST (14:30 – 15:30 EDT). As part of our celebrations for Earth Day 2021, we are keen to emphasise the global message of Restore our Earth™, while … Read more Planetary Health Tweet Chat for Earth Day 2021

Celebrate WORD Day 2021

WOrld young Rheumatic Diseases Day (WORD Day) is an annual international awareness day that takes place on March 18th each year. The aim of WORD Day is to first raise awareness of all the different kinds of rheumatic diseases in children and young people, while informing children and young people, parents, healthcare professionals, teachers, and … Read more Celebrate WORD Day 2021