rare diseases

Webinar – Mental Health Care for the Rare Disease Community

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We invite you to attend our next IFNA – UK and Ireland Chapter webinar, titled “Mental Health Care for the Rare Disease Community.” The free webinar will take place on Monday 27 February 2023, from 12.30pm until 2pm GMT, on Zoom. Click here to register! Coinciding with Rare Disease Day, the webinar will focus on … Read more Webinar – Mental Health Care for the Rare Disease Community

Webinar – Partnerships with Families Living with Rare Diseases

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We invite you to attend our fifth IFNA – UK and Ireland Chapter webinar, titled “Re-shape, Re-form, Re-imagine a True Partnership With Families Living With Rare Diseases.” The free webinar will take place on Monday 28 February 2022, from 12.30pm until 2pm GMT, on Zoom. Click here to register! Coinciding with Rare Disease Day, the … Read more Webinar – Partnerships with Families Living with Rare Diseases