Below, you will find a selection of family nursing articles of relevance to our community of health visitors, midwives and nurses with an interest in family-focused care across the life course. If you have any additional suggestions for articles to include, please let us know.
Community nursing
Carr, S.M. (2004). A framework for understanding clinical reasoning in community nursing. Journal of Clinical Nursing 13: 850-857. Click here to access the article.
Decision making
Rowland, E., Plumridge, G., Considine, A.- M., & Metcalfe, A. (2016). Preparing young people for future decision-making about cancer risk in families affected or at risk from hereditary breast cancer: A qualitative interview study. European Journal of Oncology Nursing 25: 9-15. Click here to access the article.
Dementia care
Parkinson, M., Carr, S., Rushmer, R. & Abley, C. (2016). Investigating what works to support family carers of people with dementia: A rapid realist review. Journal of Public Health 39(4):e290-e301. Click here to access the article.
Family-focused care interventions
Mahdi Shamali, M., Esandi Larramendi, N., Østergaard, B., Barbieri-Figueiredo, M., Brødsgaard, A., Canga-Armayor, A., Brochstedt Dieperink, A., Garcia-Vivar, C., Konradsen, H., Nordtug, B., Lambert, V., Mahrer-Imhof, R., Metzing, S., Nagl-Cupal, M., Imhof, L., Kolbrun Svavarsdottir, E., Swallow, V. and Luttik, M.L. (2022). Nurses’ attitudes towards family importance in nursing care across Europe. Journal of Clinical Nursing, 1: 1-12. Click here to access the article
Smith, J., Ali, P., Birks, Y., Curtis, P., Fairbrother, H., Kirk, S., Saltiel, D., Thompson, J. & Swallow, V. (2020). Umbrella review of family-focused care interventions supporting families where a family member has a long-term condition. Journal of Advanced Nursing 00:1– 13. Click here to access the article.
Nurses aiding condition identification and management
Metcalfe, A. (2018). Sharing Genetic Risk Information: Implications for family nurses across the life span. Journal of Family Nursing 24 (1): 86-105. Click here to access the article.
Mendes, Á., Metcalfe, A., Paneque, M., Sousa, L., Clarke, A.J., & Sequeiros, J. (2018). Communication of information about genetic risks: putting families at the center. Family Process 57 (3): 836-846. Click here to access the article.
Swallow, V., Clarke, C., Campbell, S. & Lambert, H. (2009). Nurses as family learning brokers: Shared management in childhood chronic kidney disease. Journal of Nursing and Healthcare of Chronic Illness 1(1): 49-59. Click here to access the article.
Scott, J. E. S., Swallow, V., Coulthard, M. G., Lambert, H. J., & Lee, R. E. J. (1997). Screening of newborn babies for familial ureteric reflux. Lancet 350(9075): 396-400. Click here to access the article.
Palliative care
Wolkowski, A. & Carr, S. (2017). Does respite care address the needs of palliative care service users and carers? Their perspectives and experiences. International Journal of Palliative Nursing 23(4):174-185.
Click here to access the article.
Clarke, C., Wolkowski, A. & Carr, S.M. (2010). What does respite care mean for palliative care service users and carers? Messages from a conceptual mapping. International Journal of Palliative Nursing 18(8):388-392. Click here to access the article.
Parents, carers, and families of children with acute conditions
Santos, J. S., Neill, S. and de Mello, D. F. (2023). “Adolescent mothers, self-care and childcare: content validation of an Event History Calendar.” Revista da Escola de Enfermagem da USP.
Tan, C. D., S., Bressan, R., Carter, M., Hylén, I., Kristensson, M., Lakhanpaul, S., Mintegi, Moll, H. A. and S. Neill (2023). “Parental help-seeking behaviour for, and care of, a sick or injured child during the COVID-19 pandemic: a European online survey.” BMC Health Services Research 23(1).
Neill, S. J., & Coyne, I. (2018). The Role of Felt or Enacted Criticism in Parents’ Decision Making in Differing Contexts and Communities: Toward a Formal Grounded Theory. Journal of Family Nursing 24(3): 443–469. Click here to access the article.
Neill, S.J., Cowley, S. & Williams, C. (2013). The role of felt or enacted criticism in understanding parent’s help seeking in acute childhood illness at home: A grounded theory study. International Journal of Nursing Studies 50(6); 757-767. Click here to access the article.
Neill, S.J. (2010). Containing acute childhood illness within family life: A substantive grounded theory. Journal of Child Health Care 14(4): 327-344. Click here to access the article.
Neill, S.J. (2007). Grounded theory sampling: ‘Whole’ family research. Journal of Research in Nursing 12(5): 435-443. Click here to access the article.
Parents, carers, and families of children with long-term conditions
Waldboth, V., Patch, C., Mahrer-Imhof, R., & Metcalfe, A. (2016). Living a normal life in an extraordinary way: A systematic review investigating experiences of families of young people’s transition into adulthood when affected by a genetic and chronic childhood condition. International Journal of Nursing Studies 62: 44-59. Click here to access the article.
Smith, J., Swallow, V. & Coyne, I. (2015). Involving parents in managing their child’s long-term condition – a concept synthesis of family-centered care and partnership-in-care. Journal of Pediatric Nursing 30(1):143-159. Click here to access the article.
Swallow, V. M., Knafl, K., Santacroce, S., Campbell, M., Hall, A. G., Smith, T. & Carolan, I. (2014). An interactive health communication application for supporting parents managing childhood long-term conditions: outcomes of a randomized controlled feasibility trial. JMIR Research Protocols 3(4):e69. Click here to access the article.
Swallow, V., Lambert, H., Clarke, C., Campbell, S. & Jacoby, A. (2008). Childhood chronic-kidney-disease: A longitudinal-qualitative study of families learning to share management early in the trajectory. Patient Education and Counseling 73(2):354-362. Click here to access the article.
Participatory and co-production research approaches
Neill, S. J. (2005). Research with children: A critical review of the guidelines. Journal of Child Health Care 9(1): 46-58. Click here to access the article.